What a Treat!

Our first official Halloween with 3 children actively participating was a treat!

Last year Mailey just rode in her stroller then helped me pass out candy.

This year Mailey refused to ride in her "duh die, duh die" and insisted on walking.

And running.

And squealing.

And not following the other children.

It was hilarious!

As I type, Tyson is still out with them while I eat a Twix, hand out candy, upload photos, blog, and do laundry. I'm a multi-tasker, what can I say?

Makenna was a cheetah, Tracen was Bumblebee, and Mailey...well, she was a fairy/flower/Cindy Lou Who/nymph/whatever we had in the dress up bucket.



Tracen tried wearing his real Bumblebee helmet, but then decided he looked like a bobblehead.
16 month olds do not stay in pictures. I guess I didn't know that.








A perfect Halloween night sky!


Happy Fall to everyone and hope you had a night full of treats, too!

Some Prayers

I am so far behind in blogging, but I didn't want you to miss this before I post on our life...someday!

Several years ago a watched a story on TLC about a young boy with EB. I was blown away by his struggles, and the skin disorder has always been on my mind since. One day I heard of a mommy needing our prayers. She had lost a son who was stillborn, and then she was having another son, but he was born with severe skin loss. They found out he had EB, and that EB was probably what had caused her first to pass away. I've been reading their story, and their page helped me find other pages for kids with EB.

Every time I change Mailey's diaper, hug her, give her a bath, clean off a scrape when she falls...I think of these kids. Any friction at all on their skin causes it to blister and slough off. They must remain wrapped from their necks down, most have a g-tube, and they fight infections along with multiple complications their entire lives. Kids, just like ours, trying to be kids in such a situation is so hard.





I would love for you to read about some of them.

Tripp's mom is posting all week with some answers to questions about EB. She explains it in a great way.

Jonah's mom sent a letter to their entire neighborhood, introducing them to Jonah and teaching them about EB.

Just thought I would at least try and raise some awareness for those of us who don't know anything about this skin condition. But be ready...some of these kids will steal your heart. They are amazingly strong, and their mommas are superheroes.